Monday, April 29, 2019

Big Appointment Day

The nerves are setting in. Tomorrow is a pretty big appointment day. I meet for the first time with my medical oncologist, Dr. Bloom. He will be my guy from here on out. He comes very highly recommended, and from what I’ve found, I feel like I will be in great hands. Before this cancer world, I didn’t realize the difference. Dr. Rueth was my surgical oncologist. Her job is to remove the cancer surgically. I also have an appointment with her tomorrow to talk about how surgery went and how I’m recovering. Then Dr. Bloom is the medical oncologist. He is in charge of treating it medically. I am hoping and praying with all that I have that I will not need chemo, and will be able to go forward with hormone therapy. The type of cancer I have seems to be a great fit for this type of treatment, so I’m praying that’s all I will need. It sounds like there will be another test needed to be run from the pathology from surgery to determine this exactly, and I’m hoping they will have those results tomorrow. I’m about as nervous for this appointment as I was for surgery.

This afternoon I’m off to meet with a physical therapist to get exercises to do that will hopefully help prevent any lymphedema, that is can often be a side effect of this surgery. On Friday, I go back in to the plastic surgery and could possibly get the first injections into the tissue expanders. It’s all such a process with so many appointments. Again, so thankful for all of the support we have in family and friends to help with these appointments, helping to get our kids where they need to be, etc. Also, just need to say a huge thank you to all of you that have dropped off meals. It has been such a gift to not have to worry about that, and to be able to sit and enjoy meals with my family. Again, all the cards and gifts that have come as well, I just don’t have enough thanks to explain how much your kind words and thoughts of support mean and how mucb they help. Thank you.

So for today, please say some bold prayers that my appointment goes well tomorrow, and that we get the news we’re so hoping for, that chemo won’t be needed on this journey. If I have to, I’ll get through it, I know that. But I’m  hoping and praying that it won’t be necessary.

Sunday, April 28, 2019

The Roller Coaster of Recovery

Recovery...so how's it going? To be honest, it's been a bit of a roller coaster, which I suppose I should get used to.  Today, I'm 10 days post surgery.   The first few days home, I was feeling actually really good, feeling pretty proud of myself for how I was handling everything.  It wasn't as awful as I expected it to be.  I was really able to be up, walking around a bit, really able to care for myself for the most part, from pretty much day two.   I've never been so thankful for my little baby ab muscles! They have been a huge piece.  Being able to use my abs and legs to help me adjust, stand up, etc. has been really important.

Sleep the first night was scary, but I'd read that a recliner was best, so that's what I did. I also decided that first night to just let myself sleep, so I didn't wake up to take my meds.  Bad idea.  I woke that morning at about 5 and was in quite a lot of pain.  I hadn't had any Tylenol for about 7 hours, so I was hurting.  From then on, I've set an alarm now to wake up to take my Tylenol and just stay on my plan for that, and that has helped a ton.  I just set the alarm, have the Tylenol right there, wake up , take it, and back to sleep.  The worst trouble I had that first morning also was just a headache. The sleeping in the recliner thing, with your head only being able to turn so many ways, got to me.  I had to figure out a bit of a better plan for that in the next nights.

I know I've shared earlier that I'm super sensitive to pain meds. I blame my dad. ;) He is the same way, as is my sister.  I had to take Vicodin when I was 18 and it made me so, so sick, I've never taken anything since. I really thought I'd have to try something this time, but after getting so sick in the hospital on the med they gave me, I knew I'd rather not.  So I've just been using Tylenol, and it has been great.  They did prescribe a muscle relaxer called Robaxin, that isn't a narcotic and doesn't make me sick. So I can take that as needed if I start to have spasms in my chest or it gets really tight, but I haven't needed it too much, and thankfully it doesn't make me sick. Those two things have pretty much made me comfortable for the most part. I think not taking the narcotic has actually really, really helped me feel good in this recovery.  I don't feel too groggy at all, and have more energy to get up and move around, get outside, etc. when I'm feeling up to it.

On Sunday, I was able to wash my hair which felt amazing. I just did a little flip over the sink and I thought Cullen was going to have to do it all, but I actually ha pretty good range of motion in my right arm at that point. My left was quite a bit more sore, as I had a lot of breast tissue in my armpit area she removed, so that's much more sore, but it was still workable.  It felt AMAZING.  I was able to get cleaned up, and get over to my parents house to celebrate Easter. It was a beautiful day, and I got outside with my kids while they hunted eggs, watched them try out their new fishing poles, swing the bat a bit, and just enjoy the outside with them.  I never thought I'd be able to do that on day 3. So thankful.  LISTEN TO YOUR BODY though! When I got home, I was tired. I went up to take a little nap, and tried out my bed for the nap, since it was a short time, and it felt wonderful. I just propped myself up a bit with pillows and it was fine for a little nap.  The craziest thing that night was when the itching started.  Holy Cow! That was insane.  It was such an intense itch, right where my boobs should be, so there as no way to itch it.  It sounds like it's just a part of nerves trying to figure out what was going on, but it was NOT fun.  I did my best to try to find anything to distract myself, and it eventually passed, but it was rough.

Day 4 I also attempted my first full shower.  Oh boy.   It was time, but I was terrified.  I had the go ahead to shower 48 hours after surgery, but I couldn't. There were a few reasons one. The big one..I was TERRIFIED to take off the bra I've had on since the morning after surgery.  It was compressing my chest and felt good that way, and I was not ready to see the damage.  Reason two was that I was really nervous about navigating the drains.  Drains SUCK.   But, my stank overcame my fear! I've said SO many times how thankful I am to have such an amazingly supportive partner to go through this with. Cullen has been beyond amazing.  I'm not going to lie, standing in the bathroom, ready to take that bra off, I cried.  I really don't care that much what it looks like. I mean, it's always going to be covered up, but something about seeing it was so scary.  But I did it.  It wasn't as awful as I thought.  Though I didn't look in the mirror yet.  Just not ready for that yet. Once I got my drains hooked around the little tie around my neck they gave me, it was on and it felt amazing, and I no longer attracted flies.

The days went by pretty much like that.  On Thursday my mom took me to lunch and to get pedicures so that was awesome. It felt so good to get out and feel a little normal!  On Friday, I had my first follow up with my plastic surgeon and got my drains out! AMAZING! It felt so good to get those awful things out of me.  I also met up with some coworkers for a little bit after school and it was great to get out and see some friends too.

Then Saturday came.  It was a rough day.  Probably my worst one yet.  I got up in the morning and when I moved my arms to adjust my ponytail, I felt this awful zinging in by right boob.  I feel like I have a pretty strong pain tolerance, and it was through the roof. I got up, and bent down to give Beckett a little kiss on the head, as he was laying on the couch, and it did it again and about dropped me to my knees. I was so scared that I had done something, but after a little research, I'm pretty positive it's more nerve stuff.  We were headed to run a few errands, and I just had to move so, so carefully.  It felt like all the progress I'd made with range of motion, went about 10 steps backwards. I felt as fragile as I had since the very first day. It was frustrating and defeating.  It got a little better as the day went on, but it would randomly happen every so often.  Couple that with the constant feeling that the expander is digging into my ribs, and it was a tough, tough day.

It was also shower day again.  Those are my toughest times right now.  I feel okay when I'm all clothed and covered up, but taking off bra, and putting it all out there is just an entire different thing. It feels so exposed and vulnerable.  I've looked down at the damage, but haven't braved the mirror yet. I'll get there one day. But I've looked down at my chest..and cried.  I think I've cried with every shower I've taken.  My chest is wrinkled, dented, you can see the expanders digging in.  There is extra skin, for when they expand.  It really isn't a vain thing. I really don't care about that.  I have an amazing husband who loves me no matter what, and I know that.  I know that these scars mean the cancer is out of my body, and for that I am so grateful.  But it's hard.  It's rough right now.  The emotions are so raw and new. I know one day I will wear these scars with honor and pride. I know that and I'm excited for that.  But for now, I'm just not quite ready to face the mirror.

So as that day came to an end, I let myself have a little pity party.  It was just like a big, slap in the face reminder that this sucks.  It is so much more than recovering from a surgery.  It's cancer.  It is such a huge process.  I'm tired of sleeping in a recliner. I just want to be in my own bed, with my husband.  It's lonely sleeping downstairs overnight by myself.  As comfortable as the recliner is, I'm tired of sleeping there.  But, these tissue expanders are ridiculously uncomfortable. It feels like I'm wearing a bra that weighs about 20 pounds,  and has an underwire that constantly is digging into my ribs, except it isn't a bra and I can't take it off.  When I lay in my bed, it is just too uncomfortable right now.  I can handle it, I can. But the thought of having to get used to this for MONTHS, just put me in sad place yesterday.  If I have to have chemo, it could be even longer.  At this point right now, I'm wondering if these expanders are worth it.  They're filled to 200cc right now, so there is a little something there. I jokingly told my surgeon on Friday, that I'm just good with that!  I've had big boobs my whole life. They're way overrated! I don't need them. I told him we could just swap these out as soon as possible and I'll be good with that!  He kind of laughed and told me to just give it a little time, as I was only a week out of surgery.

Thankfully, today is a new day.  The zinging has subsided quite a bit, so I feel a little better.  The weight and the digging is still there, but I feel like I'm just going to have to get used to it, as ridiculous as that sounds.  Many brave, strong women have done it before me, so I know I can too.  Cullen and I went to church this morning and heard an amazing message about living bold.  It was so great to sit and listen to.  The pastor talked about how God might be speaking to you, to help you find your way to live bold, and step out of your comfort zone.  As I was thinking about it later, for me, I think it's this.  I do.  If someone, somewhere finds some comfort or help in this and all of my crazy thoughts,  it will be worth it to me. My growth and development in my faith is a journey.  Dealing with this cancer is a journey. Heck, figuring out life is a journey.  I know these thoughts are personal.  But I'm okay with that.   If I can help someone feel not so alone, even for a minute, then I'm so glad to put this out there.

With that, for those of you that may not know, my dad is going through cancer as well, and has a big appointment tomorrow.  If you could spare some prayers tonight for him, that he has good reports from his scans, and that nothing new is growing, that would be amazing.  He has battled for over 10 years and is doing pretty well, but scan time is always scary, and I'd really appreciate the prayers.  Dang...cancer freaking sucks.





Wednesday, April 24, 2019

The Hearts of Kids

I have had so many people say to me, "Why don't you just take the rest of the year off?"  I know they're looking out for me, thinking the extra rest would be best.  Though for me, getting to end the year with my kids would be the best thing.  I tell you, I have said so many times, this year especially, how much I LOVE my job. I truly do.  I loved it before any of this happened.  Teaching is the best. It can also be so extremely challenging, don't get me wrong, but it is so, so much fun and so rewarding.  I have taught so many grade levels and loved them all, but the past two years in 5th grade, I absolutely LOVE going to work each day.  I have found the place where I belong.  So the thought of missing the entire rest of the year with my kids makes me so, so sad. I really, really hope that isn't the case, and I'm feeling pretty optimistic that I'm going to get back for the last couple weeks with them.

This. This is why. This came in the mail today from one of my sweet students.  This is what I have waiting for me back at school.  Kids like this, with hearts like this.  Who wouldn't want to get back to that? Is this not just the most thoughtful, heartfelt, caring thing? Seriously.  I messaged her mom immediately to let her know what an incredible child she has.  Now,  I don't feel right keeping this poor child's money. I'll find a way to get it back to her. But the thought behind this reminds me so much of why I do what I do, why I love it so much, and why I have the greatest job in the world.  Who wouldn't want to spend their days with kids with hearts like this? I was all set to write about my recovery today, and I might later, but this won for now.  It needed to be shared.  We just don't often give kids enough credit.  We often hear about the negative.  But I tell you, kids are the very best and I thank my lucky stars that I have a job that allows me to hang out with people like this all day.



Monday, April 22, 2019

Peace Out Boobs...and Tumor!

A big reason I started writing here was to get my thoughts out, document this adventure, and hope that it might help others one day.  When I was looking up things about what to expect, I wanted to read things that people wrote, that actually had been through it. I wanted the raw, the real, the good, the bad and the ugly.  I wanted to know how to prepare and what to expect. So that's what this post is all about...the surgery and how it's been going after.  It might be more information than you want to know, so you won't hurt my feelings if you skip right over this entry. ;) Here we go.

Wednesday night before I went to bed I had to shower and scrub with this special, antiseptic soap called Hibicleanse. It smelled pretty awful.  My directions were also to scrub from chin to toes, and scrub the surgical area for 5 minutes.  Standing in the shower scrubbing my boobs for 5 minutes each was really not what I wanted to be doing, but I guess in a weird way, it was a time for me to spend a little last minute, quality time with "the girls".  I kind of looked at it like Marie Kondo and the whole Tidying Up trend.  I thanked them for their service, for feeding my three babies, but they most definitely no longer bring me joy, so I told them it's time for them to go. I had to do the same thing Thursday morning.  We had to be at the hospital at 9:15, and I was so worried about being late, we got there at about 8:30.  I wore my camo pants, taking the hint from my amazing coworkers, and I prepared to head into this bear hunt ready to fight!

Camo pants on, ready for battle (Also, they're the softest, coziest pants I have!) Check them out at my  friends shop, Grace + Gumption!

The first thing I had to do was the sentinel node mapping. Basically they had to inject blue, radioactive dye into my breast.  This would flow into the nodes, and my surgeon used some special device in surgery to see that, and locate the sentinel node, to do what she needed to do.  I'm not sure all of the details of this.  It was fairly painless and very quick. Then we had to go meet with a few other registration people. I jokingly told Cullen I kind of felt like we were on the Amazing Race, as we went from place to place.  Finally we landed in our final waiting room, and that's when I had to go back without Cullen.  This part sucked.  They took me back to get my iv in, but there was a lot of waiting around, and with nobody to chat with and distract me, and not much phone service to keep me occupied, I was left with my thoughts, which wasn't the best place to be at that moment.  I was also freezing, and so I was not looking forward to stripping down to just the gown, but they had this incredible device that pumped hot air into my gown! I inflated like a superhero, and was instantly warm. It helped with the nerves a lot too.  The nurse taking care of me was pretty sweet, but she had a Green Bay Packers clip on her lanyard.  After we clarified where we both stood on our teams, discussed our trips to Lambeau, we agreed we could still be friends. She was great.  After about an hour, Cullen, my mom and dad got to come back in and hang out until it was go time. 

My surgeons came in an explained one last time how things would go, the anesthesiologist and then the nurse anesthetist came in.  He gave me something that he said would feel like I've had a couple glasses of wine. Whoa.  I told him I could've used that the week before!  He also lovingly referred to my parents as "Team Mary and Larry." I don't remember much after that.  The last thing I actually really remember is him telling me that at that moment, I was the most important thing in his world.  That was a comforting thought as I was being wheeled off.  After quick goodbyes and good lucks from my parents and Cullen, that was it.

This photo must've been after the "wine" shot, because I don't remember Cullen taking it. I really didn't want many photos that day, but looking back, I'm so glad he snapped a few. He knows me too well. 

Surgery started pretty much as scheduled at 11:30 and the next thing I know, I was in recovery and Cullen was telling me that there was no cancer in my lymph nodes.  I just remember crying, and being so overwhelmed and filled with gratitude.  He said he got worried because I kept asking him over and over, but I remember clearly, I just needed to keep hearing it.  I think surgery lasted about 4 hours.  They got me back up to my room, and I remember my mom and dad being there, but I do remember that I could hardly keep my eyes open. I was so tired, and I think the anesthesia just hit me really hard. I'd never had to be under that long before. I'm also super, super sensitive to pain meds, so I think that anesthesia really took a toll on me.  Sweet Cullen ran down to Panera and came back with a smoothie, my favorite soup, bread, basically anything to try to help me get something in my stomach, but I could hardly keep my eyes open, let alone eat.  I felt so nauseous.  They were giving me some pain med in my iv, but I think it was making me worse.  Then they tried a muscle relaxer that was supposed to help relax my chest muscles, but that made me throw up too.  It was rough. I just so badly wanted to sleep, but between coming in for meds, emptying my drains and checking vitals, sleep was hard to come by. It was a rough night.  
Trying so hard to feel better...and my A+ nurse 

Cullen thought it was funny that I earned the title of "Fall Risk" after my first rocky go round of getting up.

The next morning, I still felt pretty terrible. The only thing I could think was, how in the heck do they think I can go home today? They had kept saying just one night, but I couldn't even stand.  My surgeons both checked in and said things looked good.  They took the catheter out and wanted me to try to stand up to walk.  I still was feeling so crazy tired, nauseous and light headed, I only got a few steps out of my room and had to lay back down.  I was pretty defeated at this point, thinking I was going to be stuck there for awhile.  But, my surgeon had said that by afternoon I should start to feel better.  As the morning went on, I did slowly start to feel better. I think now, I really just needed the anesthesia to wear off, and get the nasty pain meds out of my system.  Tylenol from here on out for this chick.  No bueno on those narcotics.  Cullen declared I would definitely not make a good druggie! By late morning, I was able to eat some soup from Panera, and made it a whole lap around the nurse area outside of my room.  The nurse also wanted to get me in the bra that my surgeon had me get. This meant taking off my bandages.  I was NOT ready for that.  I couldn't look. I still haven't crossed that bridge yet, but I will.  Soon enough.  Surprisingly, with the expanders in,  I do have little baby boobs right now. Which is better than I was expecting..I'm just not ready to see them in all their glory just yet.  But when you've had big boobs your whole life, and so often felt like all boobs, it's kind of a nice feeling to not have that going on.  Trying to find those positives! 

After that, my sweet hubby brushed my hair for me! I was feeing pretty gross and definitely rocking some Harper-level bedhead.  He's too funny. His mom was a hair stylist, so he basically said as the son of a professional, I got first rate service.  We took another few laps around, and this time I even got to switch from red socks to blue socks, which meant we could take our laps on our own! Freedom! After these few laps, I was feeling so much better and ready to bust out of this place and get.home. to rest and recover.



So we got all of our discharge directions, and were headed home! Wahoo!  The thing I was the most nervous about was the drains.  Like I've said before, if admin doesn't work out for Cullen, he could go into nursing.  He has been AMAZING.  He listened, got all of the directions on how to care for them, empty them, etc. and has taken the absolute best care of me.  It really was ridiculously hard to believe that less that 24 hours after my surgery finished, I was heading home.  It was also crazy how much better I felt from about 6 in the morning, when I couldn't even stand, to about 2 when I was going home.  What a crazy difference those few hours made.


This pillow is the other best thing I've had, and I can't link it anywhere, because my wonderful aunt Rachel made it for me!  So, find yourself a sweet aunt that can sew because this thing has been a lifesaver! It helped a ton in the car, with the seatbelt.  Sitting in a chair or laying in a recliner, it hugs you and lets you prop your arms up. It's awesome.  It's like a mastectomy Boppy pillow! 

So there we are, that's pretty much how my surgery went down.  I am SO beyond glad that giant step is over, but most thankful of all for the news that my lymph nodes were clear.  I have a lot of answers still left to figure out. I'm currently waiting on a call from my surgical oncologist as I type this with the final pathology report from surgery. I have a big appointment on April 30 with my surgeon, and my oncologist who I will be seeing.  This will determine the next steps as far as chemo, no chemo, medicines, etc.  I don't know what that will bring yet.  But right now,  I'm choosing to celebrate that the tumor is out, and this major surgery is OVER.  I can't explain what it's like to sit for 5 weeks knowing the cancer is in there, knowing you have this life changing, major surgery coming up, now having answers, etc. It has been terrible.  So having this step done, and being able to move forward with a plan is just huge right now.  

This got super long, so I'll leave it here for now, and post another a bit later talking about my recovery so far, and how that's going...but preview, it's not as awful as I feared it would be.  I just want to say that because most of the information and blogs I found when researching what to expect, talked about how awful this whole surgery is.  I was so scared.  While it definitely still sucks and isn't painless, and I wouldn't wish this experience on anyone, it's been okay.  Honestly, the actual surgery was not as horrible as I think I was expecting, and I feel like it would've helped me a bit going in if I might've found a few people that said it wasn't completely horrible.  Though I do think mindset helps a lot.  My fears and anxiety eased a lot on Wednesday when I stopped looking at this as getting my boobs cut off, and started looking at is as getting the cancer out of my body.  Then it didn't sound so bad, because I don't know about you, but I'll do whatever it takes to get that crap out of me.  If it means losing my boobs and going through this to get it out, then it's all worth it to me.  Gratitude.  So.much.gratitude.




























Wednesday, April 17, 2019

The Day is Here

Well this is it.  Tomorrow is the day. I am so anxious to just get this over with, it can't get here soon enough.  Please pray bold prayers that surgery goes well, and most importantly that this cancer is all contained to my breast.  We are praying for the best possible news.  I feel good about things right now. I really do. It's amazing what a week can do. I was in a bad place last week. I really was.  I was terrified, and had let my mind go to the worst places.  5 weeks is a long time to wait for answers and for this next step.  It's so easy to let your mind think of all the awful things. I have definitely done that.  But since Sunday, I've really felt a sense of peace.  I know a large part of that is the support, prayers and love from all of you.

Cullen and I went to a group through Hosanna Church called Pray for the Cure on Monday night, and it moved us beyond.  The peace and comfort it brought was hard to put into words.  Again, when I checked into this, after hearing the sermon on Sunday, it turns out they meet the 3rd Monday of each month, which "coincidentally" was Monday. I don't think it was a coincidence that this took place the week of my surgery, and that our schedules were clear to allow us to go.  I'll share more about that another time, as we definitely plan to go again.

But the support...I have been overwhelmed in the most wonderful way by the support from my family, friends, coworkers, students, families, etc.  I feel it. I do.  Today when I walked into school, I started to notice my coworkers wearing camouflage.  It turns out, they dressed to "Go on a Bear Hunt" with me. I love it.  Then, they had the most beautiful cake with a perfect message, for me at lunch.  (This was balanced out by some awesome boob cupcakes my sweet friend Amy brought over for me after school! They were equally as awesome and the kids thought it was pretty funny!)  I had more heartfelt cards and notes from kids, hugs, and well wishes.  At the end of the day, my boss and some coworkers said the most beautiful prayers over me.  Remember when I shared about timing? Yeah, I'm most definitely in the right place to be going through this.  I know I am.  I also had a special little student dressed head to toe in pink for me today.  I've mentioned I have the MOST compassionate group of students this year.  They are amazingly kind and insightful.  When this group of kids was in first grade, one of their classmates was diagnosed with Ewings Sarcoma, and he has been through more than you could imagine.   He is tougher than you should have to be in fifth grade.  Then in second grade, they had another classmate diagnosed with another rare form of cancer.  He too is a warrior.  These boys have been through more than they should have to have ever gone through in their young lives.  They have been through surgeries, aggressive treatments, pain and so much more.  They both have huge hearts and wise souls.

Their classmates have been right there supporting them over the years.  They are both in my class this year.  Today, I asked these two little guys for any words of wisdom or advice.  One of them told me, "Try not to worry."  The other one said, "Believe."  I told you they were wise.  I told them if I can battle this with half of the strength and courage they've shown over the years, I'll be good.  We snapped a photo this afternoon.  They really are a huge inspiration for me.  This is a special bunch y'all.  I'm going to miss all of these kids like CRAZY the next few weeks.  People keep telling me to just take the rest of the year off.  But what some may not understand is that I LOVE my job.   I LOVE it.  I love getting to go to work with my coworkers  and these kids each day. It is truly a blessing, and I believe getting back to it will help me to get well.  I'm going to hope with everything that I get to get back to them before the end of the year.

So with that, this is the last blog I'll write with these boobs on my chest! ;) Tomorrow is the day. I'm heading up to go snuggle my kids, squeeze them tight, say lots of prayers, and get this show on the road tomorrow.  Surgery is supposed to start around 11 and should be about 4 hours.   This verse was shared with me today by two separate people.  It's perfect.

"Fear not, for I am with you; be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with my righteous right hand." Isaiah 41:10.

Thanks to ALL of you for your support and love. I feel it. I really do. Please say some extra prayers tomorrow again, for a smooth surgery and the cancer is all contained to my breast and hasn't spread.  Thank you so much.

My fave little cancer warriors

My awesome coworkers in their camo for our bear hunt - "Can't go over it, can't go under it, got to go through it."

The sweet cake made by my coworker Anne

Tuesday, April 16, 2019

My Doctor and the Purple Crayon

Another day...another doc! This post was inspired by a children’s book I love, Harold and the Purple Crayon. I thought I’d capture the beauty of this sweet little outfit I seem to be spending so much time in lately. The robe. It seems like every other day I’m in one of these, showing off the goods to anybody who wants to see! 🀣 So glad to be going through this on the other side of birthing and nursing three babies, where most modesty is out the window. 😳 Today I got marked for surgery, so my boobs currently look like Beckett got hold of them with a purple marker. πŸ–πŸ€£ I also got some more initials on them today. Oh boy.  I really should start asking for beads!

Monday, April 15, 2019

In My Boat

I said I was going to be keeping this blog real. A place for my thoughts, that might one day help my girls, or someone else that finds themselves in this place.  So let's talk faith. This is going be a long one..you've been warned. Also, I'm not super comfortable with talking about this part of my life, so hang with me.  This is a big step for me, but I really do feel I need to share this today. I have to imagine I'm not alone in how I've been feeling.  I'm a Christian. I have a strong faith, and a strong belief in God.  With that said, we definitely haven't been the best about getting to church regularly. We always had excuses.  The kids were little and hard to manage.  We have had a infant or a toddler age child at some point for about the last 11 years.  We're busy.  Often times Sundays are the only day we don't have to be somewhere between Cullen having events, photography for me, or sports for Avery.  We like to sleep in.  I'll be honest.  It was nice to have a day we didn't have to set an alarm.  Excuses excuses.  So church took a back seat.  But I've always truly believed that church doesn't have to be a building.  Our church was our slow, Sunday morning snuggles in bed as a family, or cheering on Avery at a basketball tournament, or making and having breakfast together in our jammies.  This felt okay to me.  I have never been one to want to attend church, just to say I did.  I want it to mean something.  I want to feel something.   There were a few years in there where we were attending pretty regularly, but I often struggled to get much out of it, and I honestly I did start to feel like we were just kind of attending, just so we could say we did.  That didn't seem right.   I guess that's where it kind of changed, and we started attending less regularly.  But even though we didn't attend conventional church regularly, my faith in God didn't go anywhere. I believe, I pray, and consider myself to have a pretty strong faith.

Fast forward to this last month.  I've struggled. I really have.  I haven't really struggled with the, "Why me?" But I definitely have struggled with the, "Why right now?"  I know I shared before that the timing of this is okay for lots of reasons,  but the one part that isn't okay with me, is why couldn't this have happened 20 or 30 years from now? My kids are so little.  They are babies that need their mama.  I've struggled and I've talked to God.  The questions I've had are - Why couldn't this have happened when my kids are grown?  I can do this God, but why right now?  Please God let me raise my kids.  Please don't take their mom away from them yet. - Those are my honest thoughts and struggles. So many people have told me that I have to turn it over to Him, and that He has a plan. I get it. I have probably said the same thing to someone.  But let me tell you, it is so much easier to say, than to do, when you're actually faced with it.  I'm trying SO hard to do that. I want to do that more than anything.  But it is so hard to just trust and accept His plan, when there is a possibility that that plan leaves my babies without a mom.  That thought terrifies me to no end. So it's been really hard for me to get to a place where I can truly turn it over to God.

This weekend I told Cullen we have got to get back to church. I need God right now, and I need help with it. I want to get to that place of complete trust so badly, but I'm not going to be able to get there on my own.  I need some guidance.  We weren't able to get to church yesterday, but I did watch online.  Hosanna is doing a 6 week series on miracles.  The sermon yesterday was about how God provides. It was wonderful.  She also made reference to the sermon from last week, and said it was about healing. I knew I needed to hear it. So later yesterday, I watched that one as well.  Wow.  Talk about hearing exactly what you needed to hear.  Pastor Ryan had a friend join him on stage, who shared about some physical healing he has been a part of, but also his spiritual healing.  He talked about how he felt like he'd been playing the "Holy Pokey."  He had one foot in, truly believing and trusting, and then would doubt would creep in and he'd have one foot out..and so on.  It so spoke to me.  It was exactly how I was feeling.   How ironic is the timing of me seeking this out, and the sermon was about a cancer survivor learning how to fully trust in God? I don't think that was a coincidence.  Anyway, I knew I needed to hear the rest of this series.

So last night I watched another sermon in the series.  Pastor Julia told the story from John 6: 15-21 about how Jesus' disciples were caught in a storm at sea and they were exhausted and fearing for their lives, when they saw Jesus walking on water towards them.  At first they were afraid. They thought he was a spirit.  How is it possible someone could be walking on water. It didn't make sense to them.  But he told them not to be afraid, and then they trusted him and invited him into their boat.  As soon as they did that, they arrived safely at shore.  I remember hearing this story before as a child in Sunday School, but I'd never really thought about it.  The way I heard it yesterday was completely different.  I am the one in the boat. I am the one afraid. Cancer is my storm. I am the one struggling with how to truly let Jesus in and trust that he will deliver me safely to the other side of this storm.  I sat for awhile after hearing this message and just let it sink in, and I felt a peace that I hadn't felt in a few weeks.  I shared this with Cullen too, and he is on his way working through this series as well. I know I still have a lot to figure out.  I definitely still struggle with the fear of this not being okay and not being here for my kids. That isn't going to go away in an instant.  I'm a mom and a real human. I think it's only natural. But it is a little crazy how much better I do feel now.  My prayers last night and this morning were different.  I've asked Jesus to get in my boat, and I really do feel like he'll get me safely to the shore of this storm..this surgery, this cancer...if I just trust Him.

When I got to school this morning, I had two sweet kids bring me down a gift.  They had made me a blanket and got me a whole series of books that I haven't read yet, to read during my recovery. It was the sweetest and they know me so well.  But, as I was looking at the blanket later, I flipped it over and saw that it was embroidered.  It says, "Be stronger than the storm." After last night, that was the message I saw today.  I had goosebumps.  I don't think that was a coincidence either. I think God really wants to be sure that I let Him in this boat, and keep Him in it with me and He wants me to know that He will get me through this storm if I can just trust him.  Here is a link to the Miracles series through Hosanna, if you wanted to catch any of these sermons for yourself.  The ones I've referred to here are weeks 4, 5 and 6.  https://www.hosannalc.org/series/?name=miracles

Sunday, April 14, 2019

Timing Is Everything

There is no "good" time to get cancer, unless never was an option.  But with that said, I suppose since I've been chosen to travel this road, and fight this battle, I'm pretty lucky with the timing, for many reasons.  This is the first year that my mom is retired, and having her and my dad available to help with me, my kids, etc. and not have to worry about her taking time off from work is beyond helpful.  For Cullen, this last month was, for the most part, between sports seasons.  So it was a bit easier for him to be able to be with me at appointments, in the evenings, etc.  The groups of students that I have this year at school are a special group.  They are just really wonderful, kind, thoughtful, caring kids.  I shared in Facebook earlier this week that I wish every person fighting cancer would be fortunate enough to do it with a tribe of fifth graders behind them.  This comes as no surprise then, that their families and parents are equally as wonderful and supportive.  I also have an incredible teacher stepping in to sub for me when I'm gone.  She is retired, and taught 5th grade for many years in my district, and so her stepping in will be pretty seamless for her, my kids and my team. This takes a huge worry off of my plate. I know they will be in amazing hands.  I absolutely love where I teach. I'm so lucky to work with the most incredible group of coworkers and administration.  They've been immensely supportive and caring as well.

So while I wish I wasn't here and faced with this, I am.  This past week as been tougher as negativity has crept in even more than it had before, as surgery is getting closer and it's getting real.  As much as I want it over, the reality of it is here and along with that is coming with a whole lot of fear of the actual surgery, what we will find out, recovery, etc.  So, I've had to try extra hard to find the positives hidden in this situation, and search out any silver lining I can find.  That definitely helps to push aside that fear and negativity, at least a little bit.  The prayers, the cards, the messages, the hugs, the thoughtful little gifts...they have truly been lifting me up.  The kindness and generosity of people has been like nothing I could've imagined.  Being a helper by nature, and someone that is used to being the caregiver, it's been hard to accept help from others.  But my mom shared something with me she got from my aunt that said something like, "Only you can fight your cancer.  Nobody else can do that.  So let others do the laundry, bring you meals, pick up your kids" etc.  That stuck with me and made some sense.  So I'm trying really hard to accept it.  A friend set up a meal train, and meals are taken care of for my family through my recovery. I was amazed at the support, and also at what a relief it was to know that that is something I won't have to worry about.

 I know I am blessed with the best people in my life. I didn't need cancer to tell me that, but maybe I took that for granted at times.  This has truly stopped me in my tracks and made me give thanks for all of you, all of my friends and family, my coworkers and everyone that has been lifting us up this past month.   So thank you. I really can't thank you enough. I'm sharing here a letter a fifth grade girl gave me this week. Some of you may have seen it this week as I shared it on Facebook as well. It just stopped me in my tracks, and it's a darn good thing I read it during my prep.  There were tears...a few.  Her words are so wise and insightful for anyone, especially a fifth grader.  She said, "I don't worry. I hope."  I'm going to carry that with me, especially this week and try really hard to set some of that worry aside, and just hope.  Hope that this surgery goes well, and we get the good news we're praying for.  There is a reason that I'm in this place right now. I don't know what that is yet.  But there is a reason I'm here, right now,  at this time, in this place, surrounded by the people I am.  I'm going to try really hard to take this sweet girl's advice.  I'm going to try my dang best to let my smile shine.  I'm going to try not to worry, and instead, hope. This IS going to make me stronger, I know that.  I will show cancer that I'm here to fight. I got this. πŸ’—πŸ’ͺ

Friday, April 12, 2019

Going On A Bear Hunt

No, I'm not actually planning on going hunting for bears or any other animal anytime soon..or ever, let's be real. While I do enjoy wearing a cute camo shirt or pants,  that's as far as my relationship with hunting goes.  But this old song from my days of teaching kindergarten has been stuck in my head for days now.  If you know it, the repetition part of it goes something like, "Can't go over it , Can't go over it, Can't go under it, Can't go under it, Can't go around it, Can't go around it, You've got to go through it, You've got to go through it."  I guess that's where I've been the past few days, as this mastectomy date is getting closer.  I've never wanted anything so awful, to get here so quickly.  This waiting has been excruciating.  At the same time, as it draws closer, it makes it so real. So, so real. But, the fact of it is, I can't go over it. I can't go under it. I can't go around it. The only way past it is through it, so let's get this flipping show on the road.

I've tried my very best to stay OFF the internet and Google, as that could really send a person down a dark path. But the other night, I allowed myself some time to research a bit about what to expect in my recovery from this first step.  I would be lying if I said that what I found didn't terrify me.  It sounds pretty awful, painful, etc.  The next morning, I focused on just exactly how many different things you use your chest muscles for, which turns out, is pretty much EVERYTHING.  But, I did find some helpful things and have ordered myself some pillows for under my arms, a special robe to hold my drains, some little pockets to stick in my clothing to hold drains, and a few new hoodies to keep me cozy, that zip up the front. I feel a little better about things, knowing I have some things that should hopefully make it easier.

I also had my pre-op appointment with my ob on Wednesday, and an appointment at a specialty store that sells mastectomy bras.  We went in a snowstorm (Yes, a snowstorm in APRIL) because these things needed to get done.  But, the lady helping me was so sweet. As she was fitting me, she was telling me about her oncologist and how wonderful he was when she went through her cancer and it turns out it is the same oncologist I will be seeing, so I'll take that as a good sign.  After I bared it all for this lady to see as well, and she got me all fitted, and my two super hot, new, zip up, white cotton mastectomy recovery bras and I were out.

We are going to try really hard to enjoy this weekend together before things get real next week, and I say so long to these boobs of mine.  While I want this surgery over with more than anything, and to get this tumor OUT of my body, it will also give us the answers we've been waiting on for nearly 5 weeks, as to what exactly the next steps will be.  All that will depend upon what they find during surgery.  They will be removing lymph nodes as well.  Please keep us in your prayers, specifically that we get good news after the surgery, that this cancer is all contained to my breasts, and nowhere else in my body.  That is what I'm praying for more than anything.

Friday, April 5, 2019

Real Housewife???

Cullen and I had our appointment with the plastic surgeon on Tuesday of this week.  I was so anxious for this appointment, as  we would finally set a date for the mastectomy, and just another step closer to taking care of this thing. I never imagined I’d be in a doctor’s office talking about taking off my boobs and having to build new ones, but what are you going to do right?  I hate stereotypes.  But, when I googled the doctor, every stereotypical image I've had in my head of a plastic surgeon that builds new boobs came to life.  This guy looks like he is here on a break from filming Real Housewives of Beverly Hills!  I think that's a good sign when it comes to the guy that will be responsible for rebuilding the girls. ;)  But really, he was wonderful. He was so kind, informative, helpful and comforting.  God bless these doctors, for real.  We got a ton of information and learned that this will all go down on April 18.  While I'm pretty darn scared for it, it can't get here soon enough.  The surgery is where we will finally get answers as to what exactly we're dealing with here, and will better know a plan going forward.  Please, please say so many prayers that this is all contained to my breast, and nowhere else in my body.  That is the fear that eats at me 24/7 right now.

But, this appointment wasn't without some excitement either, and kind of just seemed to be the next step in my rockstar boob series I guess!  Again, I got to put on a sweet little robe and they told me they needed to take some photos for my file.  They showed me into a little room, that was set up like a little photography studio.  Then, I took my robe off and they went on to take photos of the ol' girls from all sorts of different angles..front, back, side, we got it all!  I noticed she was using a Canon Rebel, and thought about offering some tips on perhaps some better settings or angles for her, to really make my girls look their best, but decided against it.  So another first...never had photos taken of my boobs before either, which I'm sure my parents reading this will be thrilled to hear! ;) They did let me know that my face wasn't in any of them, so that's comforting at least I suppose. 🀷‍♀️

After the photos, I went back out and the doctor came back in to take some measurements..  I've never been so thankful to have such little modesty about my boobs, or all of this could be really rough. But after birthing and nursing three babies, that's really all out the window.  The next step was him checking to see if I had enough extra fat in my belly or back to use for a different type of reconstruction.  Turns out, after checking (which basically just meant squeezing my fat) I don't. I didn't know whether to be happy about that or not! Damn, if I would've known I was supposed to be storing it up, I would definitely have had more fun eating this fall and winter!  So anyway, that's pretty much that visit.  Date is set, plan is set.   Next up I get to make an appointment to go to a special shop to get special bras for after, and anything else I may need and then we should be good to go. But for now, we're going to try to set the worries aside for the weekend, and just enjoy some family time.  Again, please keep us in your prayers, specifically  that this cancer has not spread, and that this mastectomy take care of it.  

Wednesday, April 3, 2019

My Why


These people. This is it. This is why I refuse to stay in the dark places. This is why I refuse to let this win.  I will not. I can not.  This is why I will fight with all that I have and all that I am.  This is why I will do my very best to be strong and brave in all the scary moments and the moments where I feel like I can't. These people are my everything and they need me. I need them.  I will battle and fight with all that I am to be here for them.  I've heard a lot in the past year or so about, "Knowing Your Why." I sell Younique makeup and my leaders talk a lot about your knowing your why. At the school I teach, my principal has shared with us about knowing and understanding our why.  It is important to know and understand why we do the things we do.  I have never had a more important why in my life until about three weeks ago.  This. These kids. This man. My family.  They are my why.



Tuesday, April 2, 2019

The Waiting Game and The Dark

The other thing I’m learning about this cancer world is the waiting. Damn. The waiting sucks. After that phone call, the waiting began and let me tell you, it’s not easy. Talk about a mind game. Everything in my body and mind all seems to just be messing with me. Every twinge, tingle, pain, etc. has me immediately jumping to the darkest places. Fearing this is all over my body and I’m sitting here doing nothing....waiting. But, I am beyond blessed to have so many amazing people behind me. Cullen has been absolutely amazing. He lets me cry when I need to, vent when I need to, swear when I need to 🀫, and has just been there for everything I need. I have always known that I have the most incredible family and friends, but I wouldn’t have gotten through the past couple weeks without their love and support. The messages, cards, etc. that people have sent me have truly lifted me up from these darkest of moments and places. I can’t describe it. The feelings and terror don’t go away. They’re there, but I’m learning I can’t stay in those dark places. It won’t change anything. It isn’t good for me, and it’s most definitely not good for my kids. I’ve been trying so hard to stay so positive for them. I really try to keep it light around them, and show them that this is okay and I’ve got this.

Avery, my 11 year old, is the only one that knows what’s really going on at this point. But my other two, Harper (6) and Beckett (4) are smart enough to know something is up. I need them to see me be strong and brave right now. It’s funny how that can kick in and stop the tears. Because let me tell you, if I’m being honest, it can get rough after bedtime when I finally let it all out. πŸ˜” I’m not a pretty crier folks...it’s rough. But, I do my best to not dwell in the dark places because of these three. They don’t need to know how terrified and scared I am. I’m going to be honest and just say it sucks for anyone to have to go through this, but damn...having little kids and having the constant thought that they could be left without a mama is about more than I can handle. Like I said, I try to stay positive, I do. When those really awful thoughts sneak in, I really do my best to push them aside as fast as I freaking can, but I’d be lying if I said that isn’t the one thought that drops me to my knees nearly every dang night. But we don’t stay there right? Get out of the dark places. You’re entitled to have them, but don’t stay there. So that’s what I do. I have my cry, my yell, my fit and let it all out and then move on and get it together because damn it, I am their mama. I am here right now. Here to snuggle them, love them, play with them, laugh with them, smile with them, help with homework, read stories, play dinosaurs, watch movies, tuck in at bedtime...all the simple, best things that I too easily took for granted.  Not anymore all, not anymore. I'm trying my best to savor every dang moment. I'm just trying to soak it in and thank God for the blessing that I’m here right now for these moments, and pray, pray, pray to God that I get to be here for so many more. So I wait, but not in the dark. The dark is scary and I refuse to stay there.

Highs and Lows

I was feeling so great about that appointment on Wednesday. It was the best I had felt in a week. I was feeling positive, confident and optimistic. Then, on Thursday morning  my phone rang. I’m beginning to learn this is how it goes, the ups and the downs.  How a phone call can make a break a day.  It was my doctor and she was calling to let me know that the biopsy came back and the cells were not only positive for being precancerous, it appeared to be another tumor. My stomach sank. All good thoughts were gone and the sick feeling was back. Freaking awful. Seriously, it’s crazy how that can happen in an instant. I didn’t really have much time to process and I had a classroom full of fifth graders waiting for me, so the call was short. She did try to reassure me it was still okay and this didn’t really change anything yet, other than it made the decision to have the mastectomy easy. We really won’t know anything for certain until surgery. But in my mind, I went to the worst place. It’s so easy to say stay positive, until you’ve been through something like this where your first thought in the morning is a stomach sinking thought, and the last thought of the day is the same. I’m a super positive person by nature and I’m trying, I really am, and I am most of the time I think. But this felt like a huge blow and it was just really freaking hard to stay positive. From the highest high, back to the terrified lowest  low...all in a phone call. This is the reality of cancer I guess, and it really $&*#^£* sucks.

Rock Star Boobs

After our lunch, I had to be back for the biopsy that afternoon. This might just have been my favorite part of my journey so far. I got all changed into my little robe and patiently waited my turn. I think I was younger than most of the other ladies waiting by at least a good 30 years. 😨 When they brought me back, the nurse explained what they were going to do and then the radiologist said he needed to mark on my boob. I figured he’d make a little dot or something. I just kind of sat there and he said again that he needed to sign it, so I stood up, opened my little robe, and sure enough with his little black sharpie, he put his initials right on my left boob! I laughed and told him that was the first time anyone has ever signed my boob! I felt like I was at a rock concert! 🀣 My friend said I should’ve asked him for beads! 🀣 So now I affectionately refer to them as my rock star boobs...at least while I have them just a bit longer. πŸŽ€πŸŽΈπŸŽ‰

The Roller Coaster Begins

After the initial diagnosis, there was so much to figure out. Ridgeview was great and started setting up appointments, etc. for me. But Cullen was quick to remind me how lucky we are that we live in an area with so many incredible options. After checking with a few people, the Piper Breast Center came highly recommended. We had our first appointment on March 20. From the first moment there, we knew we were in the right place. They specialize in all things breast. It’s what they do. I knew it was where we needed to be. I met the surgical oncologist, and again just clicked. She put me at ease, she made me laugh, she cracked jokes about feeling me up, she swore..we knew we were in good hands. πŸ˜‰ She began by telling me that we did catch this early and I’m going to grow to be a crabby old lady. She said that it’s stage one. That felt really good to hear. I found out my tumor is pr+, er+ and her-. Those were all pretty good things to hear I guess. I’m still learning a lot of this.  

The bad news was, there were some other tiny spots, barely large enough to be detected just a bit below my original tumor. She said we needed to biopsy those to be sure of what they were..more cancer cells or calcifications. It wouldn’t change much, mostly it would decide if a lumpectomy or mastectomy was the better route for me. Even though this took a little of the sunshine out of our good news, she still felt confident that it was a margarita/enchilada kind of day, as she called it. I hadn’t really been able to eat in days, so it felt good to finally be able to relax a bit and eat. Red Lobster Cheddar Bay Biscuits were at the top of my list! We were celebrating the good news...and 11:00 seemed a little too early for a margarita! 🍹

The Day I Ran Out Of Soap

March 14 was day I ran out of soap...otherwise known as the day that my life as I have known it changed forever.  My husband Cullen loves pink Dove soap.  I teased him about it for quite awhile at the beginning of our marriage.  It smelled kind of like an old lady to me, and here is this big strong guy using pink soap.  But, it didn't take me long to realize it actually was quite moisturizing and convenient, and I shortly found myself using it as well. πŸ˜‰

Fast forward through 13 1/2 years of marriage and using this pink soap, to March 14, when we were out.  Obviously, we've been out of soap before. But I do also have shower gel in there, and a loofah.  On this particular day, my loofah also wasn't in there.  I have 3 kids and sometimes that thing wanders away as well.  I was in a hurry so I did what we'd all do obviously and just squirted that shower gel right on my hand and used that.  Pretty much right away I felt it.  A small lump in my left breast that I hadn't noticed before.  Now I said I'll keep it real, my boobs are kind of lumpy. I'd always wondered if I'd know when I felt something off, and I did.  It was.  Then I became terrified thinking how long I'd just smoothed over this spot with my bar of soap and missed it.  I got out and tried to get ready for work and knew right away I couldn't. I knew I needed to go in. I called and got an appointment for 10:30.

I love my ob.  He's been with me for almost 12 years now, since my oldest daughter was born in 2007.  I got in with him, and he felt it too.  Though he was pretty optimistic, thinking it was likely a cyst, etc.  But to be safe, he scheduled an ultrasound and mammogram for me that afternoon.  I had some time to kill in between, so I got to head to the DMV to renew my license.  It really was an incredible day. ;) I went back for my mammogram at 1:30. I sat in the little room after that, waiting for someone for almost 45 torturous minutes.  Finally they came back and said we did need to do an ultrasound.  After the initial ultrasound with the nurse, they brought in the radiologist who showed me my lump on the screen. WAY, WAY less exciting than seeing a little baby in there, let me tell you.  His words were, "This is a worrisome spot." I"ll never forget it.  I started just shaking. They said they needed to biopsy.  At that point I text my husband Cullen, who had been asking all day if I wanted him there, and all day I'd told him I was fine.  But at this point, I needed him there.

They started the biopsy and were done before he even got there. It wasn't bad.  What was bad was laying there thinking about how my life was about to change. I tried to remain hopeful that it was nothing. I did.  But I knew.  These doctors and nurses see these things every single day. They know what they're looking at.  I even asked him after, that there was still a chance it could be fine.  He told me there is always a chance, but it's worrisome. I just knew then.

The doctor called the next day and confirmed what I already knew.  Invasive Ductal Carcinoma.  It felt like an out of body experience getting that call.  You really can't even put it into words. From then on, it's really been a whirlwind.  So many doctors, appointments, phone calls, and waiting.  That's the worst.  So here we are now, waiting to tackle this beast and win.  I have 3 babies and a husband here that need me and I will fight with every ounce I have to be here for them.  I refuse to let this win.  So here we go..the battle is on...and I've never been so thankful to have been out of Dove soap that day. πŸ’—

So Long Estrogen!

I knew it had been awhile since I updated, but didn't quite realize it had already been a year! I can't believe it's been 3 year...